Sturge Weber Uk

Sturge Weber Awareness Day - 1st November

The Sturge Weber UK charity intended to hold an Awareness Day this year on a day that would be of particular relevance to anyone affected by Sturge Weber. We chose the date on which Dr William Allen Sturge was born as he was the doctor that first discovered the syndrome. After some searching we contacted the Registry Office where his birth was registered and were informed that he was born on 1st November 1850.

The prime objective of the Day is to raise awareness of the syndrome, so please involve your friends, schools and place of work, in any activity likely to achieve this and if you do wish to raise funds as well, so much the better. Suggestions for this could be;- holding a coffee morning, wine and cheese party, cake sale, quiz night, raffle, auction and involve your local media. On the day, wear the colours of the Awareness Day logo which are white and blue, so please wear either or both colours.

So that the logo could be used by everyone to promote the day, we chose one completely different from those used by all the other Sturge Weber charities and involving the world globe, as we are trying to involve everyone and the other Sturge Weber groups in as many countries as possible. There will be a joint Facebook page for this day with input from other groups and a website.

Dr William Allen SturgeTo the right is Dr. William Allen Sturge. Born 1st November 1850 and died in March 1919. Dr. Sturge was the personal physician of Queen Victoria.

Follow the Awareness Day https://www.facebook.com/SturgeWeberAware


What Is Sturge Weber Syndrome?

This is a rare disorder of unknown incidence and origin; although present at birth, it is NOT thought to be hereditary. Sturge Weber is usually indicated by a birthmark (port wine stain) somewhere on the face, usually involving the eye and forehead, also similar blood vessels on the brain, called an angioma. Those with SW often suffer from epilepsy, hemiplegia (a weakness or stiffness affecting one side of the body, similar in appearance to that of a stroke), glaucoma and learning difficulties. Symptoms usually occur in the child`s first year of life.


Support Sturge Weber Awareness Day

This year to help support the Sturge Weber Awareness Day, we're giving everyone who signs up and donates at least £5.00 a support pack and one of our Charity Bears. The hope is then that you'll take the pack and the bear and help raise the awareness of Sturge Weber in your community.


Vist the Sturge Weber UK website Visit the Sturge Weber UK online shop Raise money for the charity by shopping on line using Give as you live.
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